VALDOSTA —
Organizers hope the Second Annual Fragile X Syndrome Team Up for a Cause Golf Tournament will bring research one step closer to a cure Friday.
The tournament aims to raise awareness and research funds for Fragile X, a genetic syndrome considered to be the most common single-gene cause of autism. Inherited from carrier parents who may display no signs, Fragile X can cause a wide spectrum of developmental delays and limitations intellectually, physically and emotionally.
Essentially, Fragile X is marked by the body’s inability to manufacture certain proteins required for normal neural development. It has been described as working as a brake in the brain, causing some Fragile X children to appear to be “extremely ADHD,” said Patty Cosey, a tournament organizer. Her son, Colten, has been diagnosed with Fragile X.
Tournament proceeds will go to Jacobs Ladder, a horse-therapy center in Hahira, that works with special-needs youngsters, and to Fraxa, the national organization working to find a cure. The tournament is sponsored by the Valdosta chapter of Fraxa.
Cosey said several Fragile X medications are in trials with the hope Fraxa will soon be able to announce a cure. Some of the trial medications may become available by 2014.
The tournament will help bring a cure date closer. Four-man teams may register to participate in the tournament through the start time at 1 p.m., Friday, Aug. 24. A $400 registration fee is required to play the golf tournament.
Non-golfers are also invited to attend the event, with no admission price required. Raffle tickets will be available to give away 200 prizes, such as dinners at local restaurants and more, Cosey said.
A silent auction offers a trip to Biloxi, Miss., two guns, and several other items.
The Second Annual Fragile X Syndrome Team Up for a Cause Golf Tournament is scheduled for 1-6:30 p.m., Friday, Aug. 24, Francis Lake Golf Course, 5366 Golf Drive, Lake Park. To register, or for more information: Call Patty Cosey, (229) 292-4944; or email pwcosey@bellsouth.net
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Colten Cosey of Valdosta is one of many children who will benefit from the Fragile X golf tournament Friday.
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Fragile X golf tournament tees off Friday
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